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Autism Spectrum Disorders: The Diagnosis From a Mother's Viewpoint Half a pair of

Autism Spectrum Disorders: The Diagnosis From a Mother's Viewpoint Half a pair of


When my Angel was born she was a lovely, traditional baby girl. She had ten fingers, and 10 toes.

A nurse at the Health Department commented that her head circumference had not grown much she was regarding 6 months previous at the time. She looked serious however passed it off as a clerical error. When Angel was ten months recent it was noted that her head was not growing at a traditional rate. At our next doctor visit, I questioned him regarding her head growth rate and told him what the nurses had said. He said not to stress, nothing was wrong.

I started feeling uneasy and turned within myself for strength, motivation and support. I prayed and did deep respiratory exercises to stay my center of control so that I may higher care for my baby. I had an inner feeling that I would wish this grounding, however I had nothing to base it on.


I had no clue that this innocent seeming symptom was a marker of Rett syndrome that falls underneath the Autism Spectrum Disorder classification. She was not diagnosed at this time as a result of there have been alternative criteria on which this diagnosis is made. There were still issues concerning her head size. She cried a ton, appeared to own spastic movements and did not create a lot of eye contact therefore I simply did what seemed to do the most good, deep breathing exercises-they calmed me and he or she more established the controlled breathing and would sleep which meant I might sleep also.

Most youngsters with a developmental disorder get referred due to behavioral abnormalities, delayed or utterly absent speech throughout early childhood. My Angel had a medical crisis which fast forwarded us into this world of chaos. I think that if she hadn't gotten such a high fever and needed hospitalization, it might are later before she was diagnosed with Rett syndrome.

February 1993,at the age of thirteen months she was having a bath, when she suddenly became as stiff as a board and then started convulsing. At the same time her body just started to spend with fever. This event was therefore traumatic to her that she ceased breathing. My husband performed CPR and my mother known as 911. Smart fortune was with us! Although our EMS team is thirty minutes from us they were on a come back run and simply happened to prevent at a Quick Mart simply four blocks from our house! They got the call and received our house during a matter of minutes. Our Angel had started coughing simply as they walked in and took over. Her temperature was dangerously high. They quickly inserted an IV line, hooked her up to Oxygen and transported her to the hospital.


She was thus sick, there was serious doubt concerning her survival. The hospital employees did everything they may to bring her temperature down, however to no avail, it kept spiking back up. For the following 2 days her temperature was still too high. Her body was therefore hot, however her head was even hotter. The nurses told me that did not matter, her core temperature is what mattered.

On the fourth day her core temperature was virtually normal. Her head was abundant hotter than her body, I was fearful regarding brain harm and regarding her life. Angel's doctor failed to tell me that she might have this Syndrome, however I saw it written on her chart. I had no idea what it meant, and how it might alter her life.

It perceived to me that she was losing skills which she had before this fever struck.. She was unable to walk, and her speech had deteriorated to the point that it had been virtually nonexistent. She might not feed herself as a result of her hands didn't seem to be working right. The loss of previously acquired skills is consistent with Rett Syndrome. Her doctor had to rule out the chance that the trauma of the fever and seizures weren't responsible for the setback, thus he didn't mention Rett to me at this time. It wasn't too long though before I used to be told that she had Rett Syndrome, it was stated casually like it was the common cold. To me if felt sort of a sucker punch.

I was treading in unchartered waters. I had never even heard of Rett Syndrome though I had heard of Autism, at now I had no plan that they both fell below the Autism Spectrum Disorder umbrella. This diagnosis was simply the start of my ongoing battle with this baffling, life altering disorder.
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Autism Spectrum Disorders: The Diagnosis From a Mother's Viewpoint Half a pair of Anaheim