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Illness Support Groups Can Have Problems! What To Expect

After planning for your support group for weeks

, or even months, it's time for your first meeting. You feel rather organized. You've prepared a proposal to start up a support group which was approved by an organization or church. You've put together a welcome folder for new members and you have scheduled your topic or speakers for coming months.

Does all of this mean that your meetings will run perfectly? Despite your best plans, the chances are unlikely. Here are a few frustrations that you may encounter during those first meetings s they are worth acknowledging and being prepared for in advance.

(1) Only a couple of people attend.

How it feels: Although it can be disappointing to put so much work into the meeting and have just one or two people come (or maybe none at all!) realize that this can be typical. Don't take it personally. You are fighting an uphill battle in getting people to attend. When they feel ill, they don't especially want to go and socialize with others. When they feel well, they'd rather do something much more fun then sit around and talk about the times they are in pain.


What to do: Hope for the best and prepare for the few. As a Christian organization, the HopeKeepers small group program founder says, "Although it's disheartening when just a couple of people show up, I know that God created that appointment. When I led a group once, just one person came, but we had the best conversation and she admitted that she was extremely shy and likely would not have even spoken if other people had attended the meeting."

Keep a summary of your lesson plan, even including the topics that were discussed. This way you can easily "replicate" the meeting another time with little preparation. Lastly, consider calling people and, without adding undo pressure, ask them what challenges are preventing them from coming? Is it transportation? Is it the time of day? How could you make it easier for more people to come?

(2) Everyone seems to ignore your lesson plan.

How it feels: It's easy to feel as though your lesson isn't interesting or brilliant enough. It can feel like people don't like your ideas or that they just don't care about the time you spent preparing.

What to do: Allow some flexibility at first and then add in more structure as the group meets. The truth is that most people are probably excited and even relieved to have other people who understand what they are going through. Simply gathering people together in one room and can open the floodgates of emotions that people have held back for years. It's hard to hold up a book and a lesson plan and force people to remain focused when a member is in tears over the ending of her marriage, for which she blames her illness. This situation can occur at any meeting, but may be more frequent during the first month.

Talk to your group about your desire to allow people to share, but also that you want everyone to leave feeling refreshed. So regardless of what happens during the meeting, you will plan to end with an uplifting article, scripture, poem, prayer, devotional, etc.

(3) Everyone just complains about everything! Their relationships, the medical professionals, their illness-the list is never ending.

How it feels: Like you are expected to manage a small riot. There are many built up emotions where people have experienced deeply wounded feelings, unjust consequences, and even medical errors. It can seem they want you to fix the situation or else they will talk incessantly about it to everyone.

What to do: Write up some guidelines, before your first meeting if possible, and include the "venting guidelines." One practical tool is to set a timer and allow everyone to have 60 seconds to share their most frustrating experience of the week. Brainstorm about a contest your group could have that would bring some humor to the venting. For example, the person who handled their irksome situation the best or most creatively could win the "Aggravated the Alligator (a rubber alligator) Award" to take home for the week.

Group members should have a sense of freedom in sharing their concerns and annoyances, but be sure to include others in the conversation. If Jane can't seem to let go of a situation, add, "Jane, I know some of us can identify with what you are sharing. Can someone else tell us how she or he has dealt with the emotions that accompany a situation that was similar?" If you are doing a study you can say, "Since we want to have plenty of time at the end to share something uplifting, let's move on to question five. Jane, would it be okay if people could offer their encouragement after the meeting or maybe later this week with a phone call or email?"

(4) One person dictates the conversations, wants to rule the meetings, and has total disregard of any plans you have, or the need other people have to talk.

How it feels: Infuriating! After all your preparation it can be annoying to have someone override your entire meeting and take the group down a path that lacks the encouragement you want to provide. You justifiably could be concerned about her impact on the group and how many people she could scare away.

What to do: Set boundaries at the beginning. While it's vital that people are allowed to communicate their disappointments, it's important that they also respect group members. They must watch their language, be aware of the amount of time they are talking, be respectful in the decisions others make about their medical treatments and more.


Put together some simple guidelines at the beginning that you hand out to new members in a welcome folder. Then if the person dominating the meetings doesn't get your hints, speak with her privately. You may also want to put her in charge of a certain part of the meeting so she can have a designated time to talk and be in a leadership position. When situations like this occur, people can be gently reminded of the guidelines they received when they first joined the group. It won't feel quite as personal as you correcting their behavior.

To wrap this up, know that facilitating a support group is often assumed to be a simple task. It's a myth that you let people know you're getting together to share and support one another, lots of people show up, and everyone's personalities just click. It rarely works this way.

It takes a special person who can effectively communicate with people to lead a support group. A facilitator must be able to gently guide people in the path you wish them to go, so that the group makes a positive emotional impact, rather than becoming a complaint forum. A leader be compassionate, but also able to set boundaries or diffuse anger. As circumstances arise, ask other leaders for ideas and support. And most of all, remember that no leader ever feels one-hundred percent capable. Having a willingness to learn and listen are some of the top leadership qualities in which to invest.

by: Lisa Copen.
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