National Scleroderma Awareness Month

June is National Scleroderma Awareness Month

June is National Scleroderma Awareness Month. Throughout the month, there are ways you can become more aware of this autoimmune disease. You can write a letter to your local government to make them aware of the disease, or you can participate in a fundraiser. Even if you just educate yourself about the disease and share that knowledge with one other person, you can make a difference.

Scleroderma is an autoimmune disease that attacks the skin and certain other organs of the body. It is passed through genetics, but scientists aren't sure exactly how it is passed along. It is not contagious, and the word "scleroderma" literally translates to "hard skin," because this is one of the common symptoms of the disease. The skin can develop discolorations, lesions, and the extremities can even turn different colors than the rest of the skin.

Patients usually die from the complications that go along with scleroderma and not the actual skin conditions. More women than men are diagnosed with the disease, but more men die from the disease. Some of the complications that occur in patients are acid reflux, high blood pressure, kidney failure, lung problems, and carpal tunnel syndrome. If a patient suffers from any of these, they will likely have to take medications to help the symptoms.

There is no cure for scleroderma, but the side effects can be treated. Prescriptions can be prescribed for heartburn, high blood pressure, and the other symptoms associated with the disease. There can also be symptoms for the different skin conditions. If you have discoloration of your extremities, you can take a medication to increase your blood flow. Because the disease affects the immune system, you can also take medications to increase the efficiency of the immune system.

If you or someone you know has scleroderma, they might want to use a medication schedule to help them to take all of the medication they need to deal with the symptoms. If you don't know anyone who suffers from scleroderma, you should visit the Scleroderma Foundation's website to further educate yourself about the disease and what you can do to help those who suffer from this disease. There are research articles and even medical studies and information regarding the disease.

You can donate time and money, or you can simply write a letter to your senator or representative to help pass the Scleroderma Research and Awareness Act. This act will help to provide funding for the research of this disease. Funding is the most important part to any disease that does not have a known cure. The more money a foundation can raise the more research they are able to do. If they can do more research it might lead them to a cure for this disease. If you are able, share the information you learn on this disease with a friend. If you know someone who has this disease, you can help them with fundraisers and other methods of advocacy.

by: Cory Ross

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